Ruby - My Story

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I was diagnosed with juvenile arthritis when I was just three-years-old so I've never known life without it.

It’s the little things that can affect me. Getting out of bed in the morning is difficult sometimes, or trying to do up the buttons on my school shirt. Even though it seems on the surface that I am dealing extremely well with my disease, every day brings a new challenge. When I go to bed at night I can't be sure I will able to walk down the stairs in the morning or even get out of bed.

I don't think anyone with arthritis will ever fully get their head around how unpredictable it is. I know a lot of things that seem normal to me seem completely alien to others my age .I know it's not normal to be marched into hospital every six weeks and hooked to a drip for four hours, I know it's not normal for a 16-year-old girl to wake up with less than no energy and in extreme pain all over her body.

Daily struggles become a little easier to handle because I know someone else understands what I'm going through and is there to help me when ever I need it.

Please ensure that children with arthritis, like Ruby, do not face the prospect of growing up with this disease alone without support.

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